Half-Day Morning Workshops -
Thursday, 8 am to 12 pm
The How-To of Community-Based
Participatory Research in "Hard to Reach" Populations Chair: Ronit Elk PhD, American Cancer Society Faculty: Suzanne Christopher PhD, Montana State University;
Linda K Larkey PhD, Arizona Cancer Center;
Laura Linnan SCD, CHES, University of North
Carolina, Chapel Hill
Description: Community-based
participatory research (CBPR), a method in which a researcher partners with the
community in
the planning, development, implementation and evaluation
of a research effort, has been shown to be remarkably
effective in devising effective approaches, resulting
in an increase in cancer prevention and early detection
measures adopted by communities. A common strategy
used in CBPR is training members of the community (also
referred to as “lay health advisors” or
LHAs) to promote health messages. Training LHAs to
promote such messages, while also collecting
accurate and reliable data, requires skills in research
methodology, cultural competence and CBPR principles
and practices.
Workshop
participants will learn
about the general principles of CBPR and develop an
appreciation for the process by which CBPR approaches
can be implemented in different settings, communities
and for various health concerns.
Psychological and Ethical
Issues in Cancer Genetics: A Primer for Clinicians and Researchers Chair: Andrea Patenaude PhD, Dana-
Farber Cancer Institute Faculty: Molly
Daniels MSc, CGC and
Susan K Peterson PhD, MPH, MD Anderson Cancer
Center
Description: This
workshop introduces the psychosocial issues that
arise for cancer patients and their families when they
consider genetic testing for hereditary cancer risk.
Increasingly, cancer genetic testing raises difficult
questions for cancer patients and their
families. Questions include how much genetic risk information
to seek, whether to undergo genetic counseling and
testing, and when and how to share genetic test results
with family members. Mutation carriers and others at-risk
must make decisions about risk management options such
as whether to undergo prophylactic surgery and, if
so, when to have surgery and which methods to select.
These questions raise complex issues; psycho-therapeutic
support for decision-making and adaptation can benefit
patients and their families. Therapists must combine
their empathetic, psychotherapeutic understanding with
awareness of the
medical issues and options, psychological concerns,
and ethical dilemmas that arise in this context. This
workshop will orient attendees to this new area of
psychosocial oncology practice.
Maintaining Quality
of Life in Patients and Caregivers at the End of
Life Chair: Timothy Pearman PhD, Tulane University Medical Center Faculty: Robert Gardner MEd, Tulane Cancer Center;
Peter C Trask PhD, MPH, Pfizer Inc
Description: This
workshop reviews the concept of Health-Related
Quality of Life (HRQOL) instruments in cancer; HRQOL
in patients with terminal illness; patterns of death
and dying in the past 100 years; and psychosocial interventions
for cancer patients in a palliative setting. Breakout
groups will discuss case examples
representative of the concepts discussed in the lectures
to facilitate discussion of issues and challenges
facing healthcare providers, and provide a practical
framework for intervening on behalf of patients and
caregivers. By the end of the workshop individuals
will be familiar with the assessment tools for measuring
HRQOL in palliative cancer patients, the various
psychosocial interventions for treating palliative
cancer patients, and the under-treated and under-researched
issues that remain to be
addressed.
Complementary, Not
Contradictory: Quantitative and Qualitative Methods
Form a Powerful Duo Chair: Ann Mertens PhD, University of Minnesota Faculty: Jeanne
Rogge Steele PhD, University of Minnesota
Description: This
workshop teaches investigators how qualitative and
quantitative research methods work together to advance
science. Participants
will review methodological issues important in
quantitative psychosocial oncology research. Using
quantitative cancer research studies
as examples, two basic types of study design will be
outlined: descriptive (sometimes called observational)
studies and analytic studies. Other important methodology
issues will be presented, such as the definition and
selection of the population to be tested and the selection
of an appropriate comparison group; methods to minimize
possible sources of bias during the study design, data
collection, or data analysis; and issues regarding
confounding as an alternative explanation for an observed
association. Participants also will learn how to talk
about qualitative research methods,
data and analysis in ways that “hard” science
colleagues will understand and respect, and how to
demonstrate that their sampling methods are appropriate
and that
their techniques for
gathering and analyzing data are systematic and rigorous.
They will learn synonyms for reliability and validity
and come away with checklists that will help get grants
funded and manuscripts published.
Half-Day
Afternoon Workshops - Thursday, 1 pm to 5 pm
Through the Lens of
Diversity, Delivering Culturally Competent Cancer
Care Chair: Harry Gibbs
MD, MD Anderson Cancer Center Faculty:Susan M Gilbert MS, MD
Anderson
Cancer Center
Description: Cultural
competency is no longer an issue confined to hospitals
in cities with large immigrant populations or to
community clinics that provide care to the underserved.
These issues are important and relevant to all health
care organizations that wish to provide the highest
quality cancer care and service to an increasingly
diverse
population. Failure to address issues of cross-cultural
communication and variations in belief systems threatens
patient satisfaction and potentially compromises delivery
of services, which can result in patient noncompliance.
This workshop develops individual cultural awareness,
with
a focus on cross-cultural communication and the
barriers encountered. Strategies for identifying potential
conflicts due to communication and cultural differences
will be introduced, with a series of action steps that
can resolve or reduce conflicts.
Integrating Clinical
Palliative Care into Oncology Settings Chair: Jane
Loitman MD, Barnes-Jewish
Hospital Palliative Care Service Faculty: Teresa
Deshields PhD, Siteman Cancer Center;
Chaplain, to be named
Description: This
workshop addresses the assessment and management
of common physical and psychological problems at various
clinical markers in the cancer trajectory, including
diagnosis, treatment, adjustment to survivorship after
treatment and recurrence of disease. The workshop also
focuses on the end of life from the medical, psychological
and spiritual perspectives.
The goals of care for individuals change along this
trajectory; these changes impact advanced directives
and direction of care, and must be given particular
attention. Assessment and management of common physical
and psychological issues will be reviewed, including
the use of psychotropic medications in symptom management,
and the similarities and distinctions between palliative
care and hospice care will be discussed. This workshop
is particularly relevant to clinicians providing
oncology patient care.
Sexual Function
and Cancer: A Practical Guide for Clinicians Chair: Leslie
Schover PhD, MD Anderson Cancer Center Faculty: Michael
Krychman MD, Memorial Sloan-Kettering Cancer
Center; Mary K Hughes RN, CNS, MD Anderson Cancer
Center; David Latini PhD, Baylor
College of Medicine
Description: Sexual
dysfunction is one of the more common and enduring
aftereffects of cancer treatment. For both genders,
typical dysfunction includes loss of desire for sex
and difficulty feeling arousal and pleasure. Erectile
dysfunction is the other frequent complaint for men,
and sexual changes related to sudden menopause — reduced
vaginal expansion and lubrication, and consequent pain
during sexual activity — are common for women.
Difficulty achieving orgasm is less common for men
or women and is often secondary to having sex with
little erotic desire or arousal. This workshop aims to
improve clinicians’ knowledge
of the causes of post-cancer sexual dysfunction,
medical treatments available, techniques of
basic sexual counseling, special needs of same-sex
couples and making appropriate referrals for more extensive
medical
or psychosocial services to treat sexual problems.
How Use of Alcohol,
Tobacco and Illicit Substances During Cancer Treatment
Affects Outcomes: Case Studies Chair/Faculty: Kathleen
Rickman DrPH, RN, CNS, MD Anderson Cancer Center
Description: The
influence of alcohol and tobacco as causal agents for
many cancers is well known. However,
the harmful consequences of continued use of alcohol,
tobacco and illicit substances during cancer treatment
is less well known or documented in the literature.
This interactive workshop will address the need for
thorough pretreatment assessment using validated screening
tools for substance use including alcohol, tobacco
and illicit substances; when to provide medically supervised
detoxification before beginning treatment; compliance
issues which affect outcomes; ethical and legal issues,
including withholding or delaying treatment until the
patient is medically stable and using toxicology screens
to verify abstinence (with or without patient consent);
and individual case studies to demonstrate pertinent
points.
Half-Day Morning Workshops, Sunday - 8 am to
12 pm
Touching
the Future: Identifying and Treating The Needs of Cancer
Survivors Over the Next Five Years Co-Chairs: Mitch Golant PhD, The Wellness
Community – National and
Natalie Hamrick PhD, Indiana University Faculty:Janey Alpert
MSW, LCSW,Susan Ash-Lee MSW, LCSW, and Teresa Simoneau PhD, Rocky
Mountain Blood and
Marrow Transplant Program;
Wayne Bardwell PhD, University of California, San Diego;
Harriet K. Berman PhD, The Wellness Community –
Greater Boston;
Joyce Bichler ACSW, Gilda’s Club Worldwide; Teresa Deshields
PhD, Siteman Cancer Center; Mary K Hughes RN, CNS, MD Anderson Cancer Center;
Stephanie Koraleski PhD, Methodist Hospital Cancer
Center;
Peggy Rios PhD, The Wellness Community – Greater
Miami;
Julia H Rowland PhD, National Cancer Institute; Stephanie T Yelton MA, LPC, CT, Waverly Hematology
Oncology
Description:A
multidisciplinary psychosocial oncology team representing
tertiary care, research, academia, clinical psychosocial
oncology and community-based support will address
the ranging needs of those with cancer across the
disease trajectory. We will present current and
emerging predictors of depression, the sexual side
effects of treatment/cancer and a clinical consultation
model of psychosocial care.The workshop
addresses issues for caregivers of blood and marrow
transplant (BMT) survivors and
identify future needs of BMT patients and caregivers.
A clinical oncology psychotherapist will present
the support needs of young survivors of breast cancer.
We will then discuss a systems-based approach, including
a seamless delivery model integrating tertiary
care with community-based support. Representatives
from community-based
organizations will share current programs, including
support groups for a time-limited population. We
will conclude with issues related to successful adaptation
to having cancer: finding meaning in and growing
from the experience.
Self-Care Strategies
for Oncology Health Care Professionals Chair: Randi
McAllister PhD, City of
Hope National Medical Center Faculty: Kate Kravits
RN, MA, AT, City
of Hope
National Medical
Center
Description: The
program content uses information from psychoneuroimmunology,
cognitive-behavioral psychology and art therapy. Wellness
strategies include deep breathing, progressive muscle
relaxation
and guided imagery, and specific art exercises to increase
self-awareness and problem solving. Art therapy principles
are incorporated into the wellness strategies and assessment
process. Course materials include a comprehensive workbook
and a CD of relaxation exercises. Participants will
use the workbook in class and take home the materials
and CD for home practice. Participants will learn to
identify personal stressors, practice specific strategies,
measure a change in perceived level of stress and develop
a personal wellness plan. Assessment includes the Maslach
Burnout Inventory and the Person in the Rain art technique.
Participants
will fill out these measures, evaluate the tools in
terms of utility and acceptability and receive a score
on the Maslach for personal use approximately two weeks
post course by mail.
